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Information Governance and Data Sharing

24 October 2013 at 3:16pm

4 – Information Governance & Data Sharing

It was raised in the Working Group by Leeds representatives that they were looking to develop a formal information sharing agreement between the University and their partner Trusts. This work is continuing but the question was whether this was already happening and this was put to the NHS-HE Forum JISCMAIL group. There were a number of very helpful replies, particularly via the Health Informatics Benchmarking Club, although there were no responses with examples of University – NHS Trust information sharing agreements.

The resources that were referenced included:

Department of Health Information Sharing Protocol guidance (link now broken, search on "NHS data sharing protocols" to find numerous examples of where the previous template was used to form data sharing agreements for operational purposes).

Wales Accord on the Sharing of Personal Information (WASPI)